Charlie Gard was an 11-month-old baby in London with a rare genetic disorder. He has died despite his parents’ fight to seek treatment in the United States.
LONDON — Charlie Gard, a terminally ill British baby at the center of a high-profile legal fight to take him to the United States for treatment, has died. He was 11 months old.
Charlie’s mother, Connie Yates, confirmed his death on Friday. “Our beautiful little boy has gone, we are so proud of you Charlie,” she said in a statement.
Charlie died in a London hospice, where he was transferred on Thursday after the British High Court ruled — against his parents wishes — that he should not be allowed to die at home. After a five-month legal fight, the same court ruled that his rare genetic disease that caused progressive brain damage and muscle weakness would not respond to experimental therapy being offered by an American neurologist.
Charlie’s condition was little known. Mitochondrial DNA depletion left him unable to move. He couldn’t breathe without a ventilator. He was blind and deaf. However, over the course of his parents’ battle to secure for him a radical, untested therapy in the U.S., his plight, and the dedication of Yates and her husband Chris Gard, became well known — it even attracted the attention of President Trump and Pope Francis.
Charlie died one week before his first birthday.
At birth, Charlie appeared to be healthy. His parents discovered he had a genetic disorder — only diagnosed in an estimated 15 other people — at a few months when he began losing movement in his arms and legs and started having frequent seizures.
Until his transfer to the hospice, Charlie had been cared for at London’s Great Ormond Street Hospital, one of the world’s leading…